On the 28th we are pleased to be part of raising awareness of IIH as part of Rare Disease Day 2017.
We have created a brand new support group for sufferers of IIH / IH on Facebook, please come and join us Here.
We have opened a brand new group on Facebook for Partners, Relatives and Carers of IIH sufferers. If you would like to join please Click Here.
We have opened a brand new group on Facebook for members to swap and share healthy food recipes. It doesn't matter if you follow or want to follow a certain diet plan these recipes can be adapted to suit you.
Each uploaded recipe is intended to be as easy and cheap to produce but obviously some differ in skill level and cost.
To join in this group please Click Here
We have spent time researching and creating useful links pages this includes Denmark, New Zealand and Canada.
We have also updated our useful links pages for UK (including Scotland, Northern Ireland and Wales), Ireland, USA and Australia along with general links.
September 2016 Awareness Month
September is our official awareness month, this year we constructed an awareness campaign and uploaded it to Youtube for people to view, the link is below.
This year we asked not only sufferers themselves to get involved but also there Partners and Families. We did this as we wanted to highlight that although we ourselves face the Physical symptoms our Partners and Families also suffer the Mental and Emotional side along with us.
The final video is very exciting and informing.
(Don't forget to watch with sound)
September 2015 Awareness Month
This year we asked fellow sufferers if they would participate by donating an image of themselves on a good day and a bad day.
We had an overwhelming response and the final article is very exciting. The object of a good day and a bad day is we wanted to focus on the fact that IIH along with many other conditions and disabilities are not always visible, however just because you can’t see it, it doesn't mean its not real.
Click Here To View